Connecticut legislation · 2025 General Assembly
Connecticut HB6919: AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY.
Status: Introduced, February 11, 2025
What the bill says
An act requiring newborn screening for duchenne muscular dystrophy. assembly convened.
From the introduced text:
AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY. Assembly convened: Section 1. Subsection (c) of section 19a-55 of the general statutes is repealed and the following is substituted in lieu thereof (Effective July 1, 2025): (c) The Commissioner of Public Health shall publish a list of all the abnormal conditions for which the department screens newborns under the newborn screening program, which shall include, but need not be limited to, testing for (1) amino acid disorders, including phenylketonuria, organic acid disorders, fatty acid oxidation disorders, including, but not limited to, long-chain 3-hydroxyacyl CoA dehydrogenase (L-CHAD) and medium-chain acyl-CoA dehydrogenase (MCAD), hypothyroidism, galactosemia, sickle cell disease, maple syrup urine disease, homocystinuria, biotinidase deficiency, congenital adrenal hyperplasia, severe combined immunodeficiency disease, adrenoleukodystrophy, spinal muscular atrophy and any other disorder included on the recommended uniform LCO No. 4152 1 of Raised Bill No. 6919 screening panel pursuant to 42 USC 300b-10, as amended from time to time, and as prescribed by the Commissioner of Public Health, [and] (2) on and after July 1, 2025, cytomegalovirus, and (3) on and after July 1, 2027, Duchenne muscular dystrophy. This act shall take effect as follows and shall amend the following sections: Section 1 July 1, 2025 19a-55(c) Statement of Purpose: To require newborn screening for Duchenne muscular dystrophy. [Proposed deletions are enclosed in brackets. …
Sponsors
- Tracy Marra (R, 141) · primary sponsor
- Christie Carpino (R, 32)
- Tom Delnicki (R, 14)
- Jillian Gilchrest (D, 18)
Latest actions
- : Filed with Legislative Commissioners' Office
- : Reported Out of Legislative Commissioners' Office
- : No New File by Committee on Appropriations
- : Tabled for the Calendar, House
- : Joint Favorable
- : Referred by House to Committee on Appropriations
- : Joint Favorable
- : Filed with Legislative Commissioners' Office
- : Reported Out of Legislative Commissioners' Office
- : No New File by Committee on Insurance and Real Estate
Common questions
- What is HB6919?
- HB6919 is a bill in the Connecticut Legislature (2025 General Assembly): AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY.
- What does HB6919 do?
- In its own words: An act requiring newborn screening for duchenne muscular dystrophy. assembly convened.
- What is the status of HB6919?
- Introduced as of February 11, 2025. Latest action: Filed with Legislative Commissioners' Office (May 6, 2025).
- Who sponsored HB6919?
- Tracy Marra (R, 141), with 3 co-sponsors.
- Where is the official record for HB6919?
- On the Connecticut Legislature website: https://www.cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&bill_num=HB06919&which_year=2025
Source: official Connecticut record. Tracked by Delilah, AI for legislation across all 50 states and Congress.