Louisiana legislation · 2026 Regular Session
Louisiana HR401: CONGRESS: Memorializes the United States Congress to work towards a cure for Sanfilippo Syndrome
Status: Passed both chambers, June 1, 2026
What the bill says
A resolution To memorialize the United States Congress to work towards a cure for Sanfilippo Syndrome.
From the introduced text:
A RESOLUTION To memorialize the United States Congress to work towards a cure for Sanfilippo Syndrome. WHEREAS, Sanfilippo syndrome, also known as "childhood Alzheimer's" or "childhood dementia", is a rare group of inherited lysosomal storage disorders that mainly affect a child's central nervous system; and WHEREAS, Sanfilippo syndrome causes multiple cognitive, behavioral, and physical symptoms that progressively get worse with time, with symptoms leading to premature death; and WHEREAS, this syndrome occurs when there is a deficiency in one of four enzymes that affect the breakdown of heparan sulfate, a complex carbohydrate, leading to the buildup in a child's cells, tissues, and organs, ultimately damaging them; and WHEREAS, according to the Cure Sanfilippo Syndrome Foundation, the disease is estimated to affect one in every seventy thousand births, and due to its rarity and mimicry of other conditions, such as attention deficit/hyperactivity disorder (ADHD) or autism, diagnosis is often delayed; and WHEREAS, there are multiple treatments for symptom management to maintain one's quality of life and prevent further complications, however, depending on the subtype, the average life expectancy ranges from early teens to early thirties; and WHEREAS, Shepard Guillory, son of Lafayette residents Natalie and Caleb Guillory, brother of Ami Guillory, and grandson of Freddie and Janita DeCourt and Michelle Guillory Page 1 of HLS 26RS-6292 ORIGINAL HR NO. and the …
Sponsors
- Beaullieu IV, Gerald (R, 48) · primary sponsor
- Billings, Beth (R, 56)
- Boudreaux, Doyle (R, 39)
- Bryant, Marcus (D, 96)
- Butler, Rhonda (R, 38)
- Chassion, Tehmi (D, 44)
- Coates, Kimberly (R, 73)
- Egan Sr., Peter (R, 74)
- Knox, Alonzo (D, 93)
- Landry, Jacob (R, 49)
- Miller, Dustin (D, 40)
- Spell, Annie (R, 45)
Latest actions
- : Taken by the Clerk of the House and presented to the Secretary of State in accordance with the Rules of the House.
- : Enrolled and signed by the Speaker of the House.
- : Read by title, amended, roll called, yeas 89, nays 0. The resolution was adopted.
- : Scheduled for floor debate on 06/01/2026.
- : Read by title, rules suspended, passed to 3rd reading.
Votes
- House Vote on HR 401, FINAL CONSIDERATION (#1907) (June 1, 2026): 89 yea, 0 nay, passed
Common questions
- What is HR401?
- HR401 is a bill in the Louisiana Legislature (2026 Regular Session): CONGRESS: Memorializes the United States Congress to work towards a cure for Sanfilippo Syndrome.
- What does HR401 do?
- In its own words: A resolution To memorialize the United States Congress to work towards a cure for Sanfilippo Syndrome.
- What is the status of HR401?
- Passed both chambers as of June 1, 2026. Latest action: Taken by the Clerk of the House and presented to the Secretary of State in accordance with the Rules of the House. (June 3, 2026).
- Who sponsored HR401?
- Beaullieu IV, Gerald (R, 48), with 11 co-sponsors.
- Where is the official record for HR401?
- On the Louisiana Legislature website: https://legis.la.gov/legis/BillInfo.aspx?s=26RS&b=HR401
Source: official Louisiana record. Tracked by Delilah, AI for legislation across all 50 states and Congress.