Michigan SR83: A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day.

What the bill says

A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day.

From the enrolled text, October 23, 2025:

A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day. Whereas, PURA syndrome is a rare neurodevelopmental disorder caused by genetic alterations in the Purine-Rich Element Binding Protein A gene, which plays a critical role in brain development and cellular function; and Whereas, Individuals affected by PURA syndrome often experience significant developmental delays, intellectual disabilities, hypotonia, feeding difficulties, and seizures, with many remaining non-verbal and facing lifelong challenges; and Whereas, PURA syndrome was first identified in medical literature in 2014, and although fewer than 1,000 cases have been diagnosed worldwide, increased access to genetic testing is expected to lead to more diagnoses; and Whereas, Families affected by PURA syndrome demonstrate extraordinary resilience and advocacy, working to provide vital support, education, and funding for research to improve the quality of life of those affected; and Whereas, Raising awareness of PURA syndrome is essential to promoting early diagnosis, advancing research, and fostering inclusive communities that support individuals with rare diseases; and Whereas, Advocacy groups and families have designated October 23rd as PURA Syndrome Awareness Day to honor those affected and to encourage public education and support; now, therefore, be it Resolved by the Senate, That the members of this legislative body recognize October 23, 2025, as PURA Syndrome Awareness Day; and be it further Resolved, That we encourage all citizens …

Read the full official text

Sponsors

• Nesbitt, Aric (R, 20) · primary sponsor
• Theis, Lana (R, 22)

Latest actions

1. October 23, 2025: ADOPTED
2. October 23, 2025: RULES SUSPENDED
3. October 23, 2025: INTRODUCED BY SENATOR ARIC NESBITT

Common questions

What is SR83?

SR83 is a bill in the Michigan Legislature (103rd Legislature): A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day.

What does SR83 do?

In its own words: A resolution to recognize October 23, 2025, as PURA Syndrome Awareness Day.

What is the status of SR83?

Passed both chambers as of October 23, 2025. Latest action: ADOPTED (October 23, 2025).

Who sponsored SR83?

Nesbitt, Aric (R, 20), with 1 co-sponsor.

Where is the official record for SR83?

On the Michigan Legislature website: https://www.legislature.mi.gov/Bills/Bill?ObjectName=2025-SR-0083