Mississippi legislation · 2026 Regular Session
Mississippi SB2474: Rare Disease Task Force; establish within the Mississippi Rare Disease Advisory Council.
Status: Signed into law, April 8, 2026
AN ACT TO ESTABLISH THE RARE DISEASE TASK FORCE WITHIN THE MISSISSIPPI RARE DISEASE ADVISORY COUNCIL; TO PROVIDE THAT THE PURPOSE OF THE TASK FORCE IS TO IDENTIFY GAPS IN CARE, EVALUATE FUNDING AND INSURANCE COVERAGE PRACTICES, ADVISE POLICYMAKERS ON EVIDENCE-BASED SOLUTIONS, AND ENSURE FAIR, TIMELY, AND EQUITABLE ACCESS TO RARE DISEASE THERAPIES IN THIS STATE; TO PROVIDE FOR THE MEMBERSHIP, POWERS AND DUTIES OF THE TASK FORCE; TO REQUIRE THE TASK FORCE TO MAKE AN ANNUAL REPORT TO CERTAIN PUBLIC OFFICIALS; TO AMEND SECTION 1 OF HOUSE BILL NO. 1622, 2026 REGULAR SESSION, TO REPLACE CERTAIN INSTANCES OF THE TERM "LICENSE" WITH "EXEMPTION" FOR THE SAKE OF ADMINISTRATIVE EFFICIENCY; AND FOR RELATED PURPOSES.
What the bill says
An act to establish the rare disease task force within the mississippi rare disease advisory council; to provide that the purpose of the task force is to identify gaps in care, evaluate funding and insurance coverage practices, advise policymakers on evidence-based solutions, and ensure fair, timely, and equitable access to rare disease therapies in this state; to provide for the membership, powers and duties of the task force; to require the task force to make an annual report to certain public officials; to amend section 1 of house bill no…
From the enrolled text, April 6, 2026:
AN ACT TO ESTABLISH THE RARE DISEASE TASK FORCE WITHIN THE MISSISSIPPI RARE DISEASE ADVISORY COUNCIL; TO PROVIDE THAT THE PURPOSE OF THE TASK FORCE IS TO IDENTIFY GAPS IN CARE, EVALUATE FUNDING AND INSURANCE COVERAGE PRACTICES, ADVISE POLICYMAKERS ON EVIDENCE-BASED SOLUTIONS, AND ENSURE FAIR, TIMELY, AND EQUITABLE ACCESS TO RARE DISEASE THERAPIES IN THIS STATE; TO PROVIDE FOR THE MEMBERSHIP, POWERS AND DUTIES OF THE TASK FORCE; TO REQUIRE THE TASK FORCE TO MAKE AN ANNUAL REPORT TO CERTAIN PUBLIC OFFICIALS; TO AMEND SECTION 1 OF HOUSE BILL NO. 1622, 2026 REGULAR SESSION, TO REPLACE CERTAIN INSTANCES OF THE TERM "LICENSE" WITH "EXEMPTION" FOR THE SAKE OF ADMINISTRATIVE EFFICIENCY; AND FOR RELATED PURPOSES. BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF MISSISSIPPI: SECTION 1. Legislative findings and purpose. (1) The Legislature finds that rare diseases collectively affect a substantial number of residents of the State of Mississippi and frequently result in delayed diagnosis, limited treatment options, fragmented care delivery, and significant financial burdens for patients and their families. The Legislature further finds that certain insurance coverage practices, including the use of alternative funding programs, may improperly limit or delay access to medically necessary therapies for individuals living with rare diseases. *SS36/R980SG* S. B. No. 2474 ~ OFFICIAL ~ G1/2 26/SS36/R980SG PAGE (2) The purpose of this act …