Missouri HB1756: Designates the first week of June each year as "June's Week" in honor of rare pediatric diseases

What the bill says

To amend chapter 9, RSMo, by adding thereto one new section relating to June's week. Section A. Chapter 9, RSMo, is amended by adding thereto one new section, to be known as section 9.501, to read as follows: 9.501. The first full week in September each year is hereby designated as "June's Week" and "Rare Pediatric Disease Week" in Missouri in honor of June, a young Missourian undergoing treatment for an atypical teratoid rhabdoid tumor, subtype B (ATRT-B). The citizens of this state are encouraged to participate in appropriate events and activities to raise public awareness of rare pediatric.

From the engrossed text:

To amend chapter 9, RSMo, by adding thereto one new section relating to June's week. Section A. Chapter 9, RSMo, is amended by adding thereto one new section, to be known as section 9.501, to read as follows: 9.501. The first full week in September each year is hereby designated as "June's Week" and "Rare Pediatric Disease Week" in Missouri in honor of June, a young Missourian undergoing treatment for an atypical teratoid rhabdoid tumor, subtype B (ATRT-B). The citizens of this state are encouraged to participate in appropriate events and activities to raise public awareness of rare pediatric diseases, encourage early recognition of symptoms, and honor Missouri children and families affected by rare pediatric diseases. ✔ EXPLANATION -- Matter enclosed in bold-faced brackets [thus] in the above bill is not enacted and is intended to be omitted from the law. Matter in bold-face type in the above bill is proposed language.

Read the full official text

Sponsors

• Michael Steinmeyer (R, 020) · primary sponsor
• Marty Murray (D, 078)
• Fowler, Ron (R, 031)
• Melissa Schmidt (R, 141)