Missouri legislation · 2026 Regular Session
Missouri HB2513: Creates provisions relating to individualized care plans for children with rare or medically complex conditions
Status: In committee, May 15, 2026
What the bill says
To amend chapter 191, RSMo, by adding thereto six new sections relating to children with rare or medically complex conditions, with a delayed effective date. Section A. Chapter 191, RSMo, is amended by adding thereto six new sections, to be known as sections 191.273, 191.276, 191.279, 191.282, 191.285, and 191.288, to read as follows: 191.273. 1. Sections 191.273 to 191.288 shall be known and may be cited as "Maddie's Law: The Rare Pediatric Disease Care and Protocol Protection Act". 2. As used in sections 191.273 to 191.288, the following terms mean: (1) "Caregiver", any parent, guardian, or.
From the introduced text:
To amend chapter 191, RSMo, by adding thereto six new sections relating to children with rare or medically complex conditions, with a delayed effective date. Section A. Chapter 191, RSMo, is amended by adding thereto six new sections, to be known as sections 191.273, 191.276, 191.279, 191.282, 191.285, and 191.288, to read as follows: 191.273. 1. Sections 191.273 to 191.288 shall be known and may be cited as "Maddie's Law: The Rare Pediatric Disease Care and Protocol Protection Act". 2. As used in sections 191.273 to 191.288, the following terms mean: (1) "Caregiver", any parent, guardian, or other person having control or custody of a child with a rare or medically complex condition; (2) "Child", any person under eighteen years of age; (3) "Department", the department of health and senior services; (4) "Emergency services", the same meaning given to the term in section 190.100; (5) "Health care professional", the same meaning given to the term in section 376.1350; (6) "Health care provider", any hospital as defined in section 197.020, emergency services provider, or other institution providing health care services; (7) "Health care service", the same meaning given to the term in section 376.1350; EXPLANATION -- Matter enclosed in bold-faced brackets [thus] in the above bill is not enacted and is intended to be omitted from the law. Matter in bold-face …