Montana legislation · 2025 Regular Session
Montana HB943: Establish the Montana rare disease advisory council
Status: Signed into law, May 19, 2025
What the bill says
An act establishing the montana rare disease advisory council; providing for advisory council membership and duties; establishing reporting requirements; providing an appropriation; and providing an effective date.
From the engrossed text:
AN ACT ESTABLISHING THE MONTANA RARE DISEASE ADVISORY COUNCIL; PROVIDING FOR ADVISORY COUNCIL MEMBERSHIP AND DUTIES; ESTABLISHING REPORTING REQUIREMENTS; PROVIDING AN APPROPRIATION; AND PROVIDING AN EFFECTIVE DATE. WHEREAS, a rare disease, sometimes called an "orphan disease", is defined as a disease that affects fewer than 200,000 people in the United States; and WHEREAS, there are more than 10,000 known rare diseases affecting more than 30 million Americans, more than half of whom are children; and WHEREAS, approximately 95% of rare diseases do not have a treatment approved by the United States Food and Drug Administration; and WHEREAS, while the exact cause for many rare diseases remains unknown, many rare diseases are genetic in origin and can be linked to mutations in a single gene or in multiple genes, which can be passed down from generation to generation; and WHEREAS, individuals with rare diseases face many obstacles, including delays in obtaining an accurate diagnosis and finding a health care provider with expertise in treating the condition and a lack of affordable access to therapies and medication used to treat rare diseases, resulting in significant physical, mental, and financial challenges; and WHEREAS, a state-based advisory council composed of qualified professionals and individuals living with rare diseases and their caregivers would educate and advise medical professionals, government agencies, legislators, and the public about …
Sponsors
- Tuss, Paul (D, 27) · primary sponsor
- Lenz, Dennis (R, 25)
Latest actions
- : Chapter Number Assigned
- : (H) Signed by Governor
- : (H) Transmitted to Governor
- : (S) Signed by President
- : (H) Signed by Speaker
- : (H) Returned from Enrolling
- : (H) Sent to Enrolling
- : (S) 3rd Reading
- : (S) Scheduled for 3rd Reading
- : (S) 2nd Reading
Votes
- Do Concur (April 18, 2025): 35 yea, 15 nay, passed
- Do Concur (April 17, 2025): 34 yea, 14 nay, passed
- Do Pass (April 8, 2025): 63 yea, 34 nay, passed
- Do Pass (April 7, 2025): 67 yea, 30 nay, passed
Subjects: Appropriations, Health Care Services
Common questions
- What is HB943?
- HB943 is a bill in the Montana Legislature (2025 Regular Session): Establish the Montana rare disease advisory council.
- What does HB943 do?
- In its own words: An act establishing the montana rare disease advisory council; providing for advisory council membership and duties; establishing reporting requirements; providing an appropriation; and providing an effective date.
- What is the status of HB943?
- Signed into law as of May 19, 2025. Latest action: Chapter Number Assigned (May 19, 2025).
- Who sponsored HB943?
- Tuss, Paul (D, 27), with 1 co-sponsor.
- Where is the official record for HB943?
- On the Montana Legislature website: https://bills.legmt.gov/#/laws/bill/2/LC4182
Source: official Montana record. Tracked by Delilah, AI for legislation across all 50 states and Congress.