New Jersey legislation · 2026-2027 Regular Session
New Jersey AJR119: Shwachman Diamond Syndrome Awareness Day-desig November 7, each yr
Status: Signed into law, August 6, 2026
Designates November 7 of each year as "Shwachman Diamond Syndrome Awareness Day" in NJ.
What the bill says
A Joint Resolution designating November 7 of each year as Shwachman Diamond Syndrome Awareness Day in New Jersey.
From the introduced text, February 19, 2026:
A Joint Resolution designating November 7 of each year as Shwachman Diamond Syndrome Awareness Day in New Jersey. WHEREAS, Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; and WHEREAS, SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; and WHEREAS, Typically, the parents of the affected individual do not show signs and symptoms of SDS; and WHEREAS, An estimated 2000 Americans are living with SDS; and WHEREAS, This rare condition occurs in approximately 1 in 80,000 newborns; and WHEREAS, Infants with SDS are born with the condition and develop symptoms usually by 4 to 6 months of age; and WHEREAS, Individuals diagnosed with SDS often develop liver dysfunction, dental problems, developmental delays, and delayed puberty; and WHEREAS, One of the main characteristics of SDS is bone marrow dysfunction; and WHEREAS, Bone marrow dysfunction leads to the production of too few white blood cells, which are essential for fighting infections, making individuals more prone to frequent or severe illnesses; and WHEREAS, In addition to having too few white blood cells, individuals with SDS may also have low levels of red blood cells, which increases their risk of developing blood disorders such …
Sponsors
- Linda S. Carter (D, 22) · primary sponsor
- James J. Kennedy (D, 22) · primary sponsor
- Craig J. Coughlin (D, 19) · primary sponsor
- Nicholas P. Scutari (D, 22) · primary sponsor
- Maureen Rowan (D, 2)
- Gerry Scharfenberger (R, 13)
- Al Barlas (R, 40)
- Dawn Fantasia (R, 24)
- John V. Azzariti Jr., M.D. (R, 39)
- Shanique Speight (D, 29)
- Robert D. Clifton (R, 12)
- Joe Danielsen (D, 17)
Latest actions
- : APP P.L.2026, JR-3.
- : PS PBH (40-0)
- : SUB FOR SJR143
- : REP 2RS
- : R/S REF SHH
- : PA (77-0-0)
- : REP 2RA
- : INT 1RA REF AHE
Votes
- 3RDG FINAL PASSAGE - Shwachman Diamond Syndrome Awareness Day-desig November 7, each yr (June 30, 2026): 40 yea, 0 nay, passed
- Senate Health, Human Services and Senior Citizens Committee: Reported favorably (June 11, 2026): 7 yea, 0 nay, passed
- 3RDG FINAL PASSAGE - Shwachman Diamond Syndrome Awareness Day-desig November 7, each yr (May 18, 2026): 77 yea, 0 nay, passed
- Assembly Health Committee: Reported favorably (May 11, 2026): 10 yea, 0 nay, passed
Subjects: COMMEMORATIONS
Common questions
- What is AJR119?
- AJR119 is a bill in the New Jersey Legislature (2026-2027 Regular Session): Shwachman Diamond Syndrome Awareness Day-desig November 7, each yr.
- What does AJR119 do?
- In its own words: A Joint Resolution designating November 7 of each year as Shwachman Diamond Syndrome Awareness Day in New Jersey.
- What is the status of AJR119?
- Signed into law as of August 6, 2026. Latest action: APP P.L.2026, JR-3. (August 6, 2026).
- Who sponsored AJR119?
- Linda S. Carter (D, 22), with 11 co-sponsors.
- Where is the official record for AJR119?
- On the New Jersey Legislature website: https://www.njleg.state.nj.us/bill-search/2026/AJR119
Source: official New Jersey record. Tracked by Delilah, AI for legislation across all 50 states and Congress.