Pennsylvania legislation · 2025-2026 Regular Session
Pennsylvania SR394: A Resolution designating the week of October 25 through 31, 2026, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
Status: In committee, October 8, 2026
What the bill says
A resolution Designating the week of October 25 through 31, 2026, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
From the introduced text, October 8, 2026:
A RESOLUTION Designating the week of October 25 through 31, 2026, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania. WHEREAS, Epidermolysis Bullosa (EB) is a rare, genetic, connective tissue disorder that is characterized by fragile skin and recurrent blister formation, inside and outside the body and, today, there is no cure; and WHEREAS, Severe forms of EB cause patients to live with constant pain and scarring, and the worst forms of EB lead to eventual disfigurement, disability and often early death; and WHEREAS, Phenotypes and outcomes of EB run the full scope, from mild to severe, with the more severe cases causing fatalities in the first year of life; and WHEREAS, In many cases, children who suffer from the more severe forms of EB do not live into their third decade of life; and WHEREAS, There are five types of EB: EB simplex, Junctional EB, Dystrophic EB, Kindler EB and EB Acquisita; and WHEREAS, EB simplex is the most common form of EB, while the other forms are relatively less common and affect the patient more severely; and WHEREAS, The presence and type of EB is differentiated by the gene that is affected and the particular protein that is produced by that gene, therefore, EB can be the result of a mutation in genes that produce 1 of 18 different structural …
Sponsors
- Judith Ward (R, 30) · primary sponsor
- Sharif Street (D, 3)
- Christine Tartaglione (D, 2)
- Vincent Hughes (D, 7)
- Vogel Jr., Elder A. (R, 47)
- Kristin Phillips-Hill (R, 28)
- Jay Costa (D, 43)
- Scott Martin (R, 13)
- Culver, Lynda Schlegel (R, 27)
- Arthur Haywood (D, 4)
Latest actions
- : Referred to RULES AND EXECUTIVE NOMINATIONS, Oct. 8, 2026
Common questions
- What is SR394?
- SR394 is a bill in the Pennsylvania Legislature (2025-2026 Regular Session): A Resolution designating the week of October 25 through 31, 2026, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
- What does SR394 do?
- In its own words: A resolution Designating the week of October 25 through 31, 2026, as "Epidermolysis Bullosa Awareness Week" in Pennsylvania.
- What is the status of SR394?
- In committee as of October 8, 2026. Latest action: Referred to RULES AND EXECUTIVE NOMINATIONS, Oct. 8, 2026 (October 8, 2026).
- Who sponsored SR394?
- Judith Ward (R, 30), with 9 co-sponsors.
- Where is the official record for SR394?
- On the Pennsylvania Legislature website: https://www.palegis.us/legislation/bills/2025/sr394
Source: official Pennsylvania record. Tracked by Delilah, AI for legislation across all 50 states and Congress.