Vermont legislation · 2025-2026 Session
Vermont H46: An act relating to the Rare Disease Advisory Council
Status: Signed into law, May 18, 2026
What the bill says
An act relating to the Rare Disease Advisory Council. (H.46) It is hereby enacted by the General Assembly of the State of Vermont.
From the chaptered text, May 18, 2026:
An act relating to the Rare Disease Advisory Council. (H.46) It is hereby enacted by the General Assembly of the State of Vermont: Sec. 1. FINDINGS The General Assembly finds that: (1) lack of awareness contributes to common and harmful obstacles that rare disease patients face, such as delays in diagnosis, misdiagnosis, lack of treatment options, high out-of-pocket costs, and limited access to medical specialists; and (2) with the support of the National Organization for Rare Disorders, various patient organizations, and stakeholders in the rare disease community, rare disease advisory councils are enabling states to strategically identify and address barriers that prevent individuals living with rare disease from accessing adequate and effective treatment and care for their condition. Sec. 2. 18 V.S.A. chapter 19 is added to read: CHAPTER 19. RARE DISEASES § 981. RARE DISEASE ADVISORY COUNCIL (a) Creation. There is created the Rare Disease Advisory Council within the Department of Health to provide guidance and recommendations to the public, General Assembly, and other government agencies and departments, as necessary, regarding the needs of individuals living with rare diseases in Vermont. VT LEG #389888 v.1 No. 98 Page 2 of 6 (b) Membership. (1) The Advisory Council shall be composed of the following members: (A) two individuals living with a rare disease, at least one of whom is an …
Sponsors
- Anne Donahue (I, Washington-1) · primary sponsor
- Daniel Noyes (D, Lamoille-2) · primary sponsor
- Mary-Katherine Stone (D, Chittenden-14) · primary sponsor
Latest actions
- : House message: Governor approved bill on [May 18, 2026]
- : Signed by Governor on [May 18, 2026]
- : Delivered to Governor on [May 12, 2026]
- : House message: House concurred in Senate proposal of amendment
- : Senate proposal of amendment concurred in
- : Action Calendar: Senate Proposal of Amendment
- : Notice Calendar: Senate Proposal of Amendment
- : Senate Message: Passed in concurrence with proposal of amendment
- : Read 3rd time & passed in concurrence with proposal of amendment
- : New Business/Third Reading
Common questions
- What is H46?
- H46 is a bill in the Vermont Legislature (2025-2026 Session): An act relating to the Rare Disease Advisory Council.
- What does H46 do?
- In its own words: An act relating to the Rare Disease Advisory Council. (H.46) It is hereby enacted by the General Assembly of the State of Vermont.
- What is the status of H46?
- Signed into law as of May 18, 2026. Latest action: House message: Governor approved bill on [May 18, 2026] (May 19, 2026).
- Who sponsored H46?
- Anne Donahue (I, Washington-1), with 2 co-sponsors.
- Where is the official record for H46?
- On the Vermont Legislature website: https://legislature.vermont.gov/bill/status/2026/H.46
Source: official Vermont record. Tracked by Delilah, AI for legislation across all 50 states and Congress.