U.S. Congress legislation · 119th Congress
HB3491: DeOndra Dixon INCLUDE Project Act of 2025
Status: Passed one chamber, July 21, 2026
To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
What the bill says
An act To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
From the introduced text, July 21, 2026:
AN ACT To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes. SECTION 1. Short title This Act may be cited as the DeOndra Dixon INCLUDE Project Act of 2025 . SECTION 2. DeOndra Dixon INCLUDE Project Part B of title IV of the Public Health Service Act ( 42 U.S.C. 284 et seq. ) is amended by adding at the end the following: SECTION 409K. Down syndrome research (a) In general The Director of NIH shall carry out a program of research, training, and investigation related to Down syndrome to be known as the INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project or the INCLUDE Project . (b) Program elements The program under subsection (a) shall include-- (1) high-risk, high-reward research on the effects of trisomy 21 on human development and health; (2) promoting research for participants with Down syndrome across the lifespan, including cohort studies to facilitate improved understanding of Down syndrome and co-occurring conditions and development of new interventions; (3) expanding the number of clinical trials that are inclusive of, or expressly for, participants with Down syndrome, including novel biomedical and pharmacological interventions and other therapies designed to promote …
Sponsors
- Diana DeGette (D, HD-001) · primary sponsor
- Richard Hudson (R, HD-009)
- Rosa DeLauro (D, HD-003)
- Tom Cole (R)
- Norton, Eleanor (D, HD-000)
- Pete Stauber (R, HD-008)
- Paul Tonko (D, HD-020)
- Brittany Pettersen (D, HD-007)
- Angela Craig (D, HD-MN-2)
- Jason Crow (D, HD-006)
- Joseph Neguse (D, HD-CO-2)
- Mark Pocan (D, HD-002)
Latest actions
- : Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
- : On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H4649-4650)
- : Motion to reconsider laid on the table Agreed to without objection.
- : DEBATE - The House proceeded with forty minutes of debate on H.R. 3491.
- : Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H4649-4650)
- : Mr. Guthrie moved to suspend the rules and pass the bill.
- : Considered under suspension of the rules. (consideration: CR H4649-4651)
- : Reported by the Committee on Energy and Commerce. H. Rept. 119-722.
- : Placed on the Union Calendar, Calendar No. 627.
- : Ordered to be Reported by the Yeas and Nays: 46 - 0.
Subjects: Research administration and funding, Hereditary and development disorders, Genetics, Medical research, Health, Congressional oversight
Common questions
- What is HB3491?
- HB3491 is a bill in Congress (119th Congress): DeOndra Dixon INCLUDE Project Act of 2025.
- What does HB3491 do?
- In its own words: An act To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
- What is the status of HB3491?
- Passed one chamber as of July 21, 2026. Latest action: Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (July 21, 2026).
- Who sponsored HB3491?
- Diana DeGette (D, HD-001), with 11 co-sponsors.
- Where is the official record for HB3491?
- On the Congress website: https://www.congress.gov/bill/119th-congress/house-bill/3491
Source: official Congress record. Tracked by Delilah, AI for legislation across all 50 states and Congress.