U.S. Congress legislation · 119th Congress
SB1838: DeOndra Dixon INCLUDE Project Act of 2026
Status: Passed one chamber, August 6, 2026
A bill to amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
What the bill says
An act To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
From the engrossed text, August 6, 2026:
AN ACT To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes. SECTION 1. Short title This Act may be cited as the DeOndra Dixon INCLUDE Project Act of 2026 . SECTION 2. DeOndra Dixon INCLUDE Project Part B of title IV of the Public Health Service Act ( 42 U.S.C. 284 et seq. ) is amended by adding at the end the following: SECTION 409K. Down syndrome research (a) In general The Director of NIH shall carry out a program of research, training, and investigation related to Down syndrome to be known as the INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project or the INCLUDE Project . (b) Program elements The program under subsection (a) shall include-- (1) high-risk, high-reward research on the effects of trisomy 21 on human development and health; (2) promoting research for participants with Down syndrome across the lifespan, including cohort studies to facilitate improved understanding of Down syndrome and co-occurring conditions and development of new interventions; (3) expanding the number of clinical trials that are inclusive of, or expressly for, participants with Down syndrome, including novel biomedical and pharmacological interventions and other therapies designed to promote …
Sponsors
- Hickenlooper, John (D) · primary sponsor
- Moran, Jerry (R)
- Booker, Cory (D)
- Markwayne Mullin (R, SD-OK)
- Bennet, Michael (D)
- Padilla, Alex (D, SD-CA)
- Capito, Shelley (R)
- Coons, Christopher (D)
- Van Hollen, Chris (D)
- Ossoff, Jon (D)
Latest actions
- : Message on Senate action sent to the House.
- : Held at the desk.
- : Received in the House.
- : Passed Senate with an amendment by Voice Vote. (text of amendment in the nature of a substitute: CR S4495-4496)
- : Passed/agreed to in Senate: Passed Senate with an amendment by Voice Vote. (text of amendment in the nature of a substitute: CR S4495-4496)
- : Measure laid before Senate by unanimous consent. (consideration: CR S4495-4498)
- : Senate Committee on Health, Education, Labor, and Pensions discharged by Unanimous Consent.
- : Introduced in Senate
- : Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Subjects: Health programs administration and funding, Research administration and funding, Hereditary and development disorders, Genetics, Medical research, Health, Congressional oversight
Common questions
- What is SB1838?
- SB1838 is a bill in Congress (119th Congress): DeOndra Dixon INCLUDE Project Act of 2026.
- What does SB1838 do?
- In its own words: An act To amend the Public Health Service Act to authorize the Secretary of Health and Human Services to carry out a program of research, training, and investigation related to Down syndrome, and for other purposes.
- What is the status of SB1838?
- Passed one chamber as of August 6, 2026. Latest action: Message on Senate action sent to the House. (August 10, 2026).
- Who sponsored SB1838?
- Hickenlooper, John (D), with 9 co-sponsors.
- Where is the official record for SB1838?
- On the Congress website: https://www.congress.gov/bill/119th-congress/senate-bill/1838
Source: official Congress record. Tracked by Delilah, AI for legislation across all 50 states and Congress.